Pushing beyond physical limits

2:32

than everybody else that's

2:32

able-bodied

2:33

but that almost makes the victory that

2:35

little bit sweeter

2:36

sometimes i do push myself too far and i

2:39

regret it and i end up paying for it

2:45

i have lost count of how many times i've

2:47

been in hospitals

2:52

it's way over 500 times it works out on

2:55

average every two weeks

2:57

it's got to the stage where most of the

2:59

staff know me by my first name and only

3:01

them by their first name

3:04

thanks to social media i've been able to

3:05

get in contact with people that have the

3:06

same condition

3:07

as me most of them are in america and we

3:10

have this lovely little group

3:12

of about four or five of us i'm the only

3:15

one from england and we

3:16

are constantly joking about my accent

3:18

between us and they really are like my

3:20

sisters

3:22

unfortunately a couple of years ago one

3:23

of the girls taylor passed away

3:25

she'd been quite unwell

3:27

[Music]

3:30

it was really hard um

3:33

not just to lose my best friend but

3:36

the reality of the condition that i'm

3:39

living with

3:40

because as much as you can try and make

3:42

it as light-hearted as possible it is

3:43

life-threatening and

3:45

the chances are it will kill me one day

3:49

seeing